In this interview, #gogoldva Advocates Mandy Price and Juanita Prada share how they've both been personally affected by childhood cancer. While each of their life-changing journeys is very different and unique, their mission now is the same: to advocate and raise awareness for kids with cancer, starting with going gold in September.
“I was 15 years old when I completed my second treatment in 2008 and have been ‘cancer-free’ for twelve years. I quote cancer-free because most people are not aware that childhood cancer is a lifelong diagnosis. First, we must survive the cancer treatment and then live with long-term effects. From personal experience, I took action by speaking about these late effects through my social media advo
ACS gave a shout-out to @beholdbegold on their social media pages (a HUGE milestone for BBG) and I just want to emphasize that BBG is not about me. I am happy to speak up and share my story. However, it's about the three out of five pediatric cancer survivors who unfortunately develop late effects once treatment is over and are struggling every day in education, at work, and in life.
Thank you @goldtogether for choosing me to be one of your Gold Together Campions this year!
After struggling with many unexpected challenges after treatment was complete (aka cancer's late effects), she founded BeholdBegold to help those undergoing the late effects and barriers that come with surviving childhood cancer. Juanita talks us through her experience and how her relationships with peers were anything but normal. Learn more about b-present
My childhood cancer journey came with a tremendous amount of uncertainties, stressors, obstacles, barriers, suffering, and adversities. Not just for me, but also for my family who underwent this unimaginable pediatric disease with me. It affected us all mentally, physically, emotionally, socially, and spiritually. A surreal state of disequilibrium, shock, and disbelief arises when childhood cance
#nationalcancersurvivorsmonth by modeling my inspiring Hero Beads! Yesterday I had the incredible opportunity of being interviewed in a podcast in which I talked a bit about the symbolic meaning behind these resilient beads demonstrating strength and accomplishments during this brutal cancer journey. Every day I’m a proud childhood cancer survivor. 5 years fighting pediatric cancer came with
Meeting with Congressional staffers and Members of Congress advocating for Childhood Cancer, discussing the Reauthorization of the Creating Hope Act which gives pharmaceutical companies an incentive to develop drugs for kids with life threatening illnesses.
The Creating Hope Act is saving Kid's lives!
It's not fair for Congress to let the Creating Hope Act expire when bioterrorism drugs and tropical diseases drugs have vouchers that are permanent.
We look forward to a permanent Creating Hope Act reauthorization bill being introduced soon.
Click on the link to read more! https://www.kidsvcancer.org/creating-hope-overview/section-908-final-text/
Educating Childhood Cancer Patients & Survivors
Virginia Childhood Cancer Advocacy Day 2018 Richmond, VA General Assembly.
Virginia Childhood Cancer Advocacy Day 2019 Richmond, VA General Assembly.
Virginia Childhood Cancer Advocacy Day 2020 Richmond, VA General Assembly.
What Is Our Message?
We have two proposed budget amendments this session. One is focused on providing supportive care in the areas of education and neuropsychological testing. The other is focused on establishing a pediatric cancer research fund to improve survival rates. Both are important to patients and survivors in Virginia.
More than 700 children are currently on active treatment for cancer in our state and we have almost 12,000 survivors. 0% of Virginia’s cancer funding in the state budget is dedicated to helping them.
A message for the Spanish speaking community to join our fight against cancer!
Cure by Design is an event in which the corporate community joins forces with local retailers and cancer survivors to benefit the American Cancer Society’s mission to save lives, celebrate lives and lead the fight for a world without cancer. The highlight of the evening is a program that celebrates local cancer survivors of all ages and of all cancer types, who share their inspirational journey and rock the runway!