Childhood cancer survivors face challenges like late treatment effects and isolation. Mariah Forster Olson and Mary Beth Collins from CAC2 discuss the CAC2 Survivorship Toolkit, highlighting its role in providing essential resources and support for survivors and their families. For questions, contact toolkit@cac2.org.
There are many wonderful childhood cancer organizations out there!
Below you can see and read about my Top 30 organizations that I have come to learn more about and support their mission and vision! Others, I support because they made a huge impact on my life during my hospitalization experience.
Founded in 1970 by a dedicated group of parents of children with cancer, the American Childhood Cancer Organization (ACCO) is the oldest and largest grassroots childhood cancer organization in the U.S. and only U.S. member of Childhood Cancer International. We are dedicated to making childhood cancer a national health priority through shaping policy, supporting research, raising awareness, and providing educational resources and innovative programs to children with cancer, survivors, and their families.
The Children’s Oncology Group (COG), a National Cancer Institute supported clinical trials group, is the world’s largest organization devoted exclusively to childhood and adolescent cancer research. The COG unites more than 9,000 experts in childhood cancer at more than 200 leading children’s hospitals, universities, and cancer centers across North America, Australia, New Zealand, and Europe in the fight against childhood cancer.
The Children’s Oncology Group research has turned children’s cancer from a virtually incurable disease 50 years ago to one with a combined 5-year survival rate of 80% today. Our goal is to cure all children and adolescents with cancer, reduce the short and long-term complications of cancer treatments, and determine the causes and find ways to prevent childhood cancer.
At the St. Baldrick’s Foundation, we do one thing, and we do it well:
We fund childhood cancer research.
Our mission is to find cures for childhood cancers and to give survivors long and healthy lives.
We are the largest private (non-government) funder of childhood cancer research grants. By funding cooperative research through the Children’s Oncology Group, we give kids nationwide access to the very latest in research and clinical trials.
Thanks to a grant review system that impresses the experts, we fund only the very best childhood cancer research.
More than 10 million kids enter a children’s hospital like Carilion Children's across North America every year. To provide the best care for kids, children’s hospitals rely on donations and community support, as Medicaid and insurance programs do not fully cover the cost of care. Since 1983, Children’s Miracle Network Hospitals has helped fill those funding gaps by raising more than $7 billion, most of it $1 at a time through Miracle Balloon icon campaigns. Its various fundraising partners and programs support the nonprofit’s mission to save and improve the lives of as many children as possible.
Ronald McDonald House Charities of Southwest Virginia provides the Ronald McDonald House, a comfortable and supportive home-away-from-home for the families of sick and injured children who must come to the Roanoke area for medical treatment, and the Ronald McDonald Family Room, a respite area for parents to rest and regroup, steps away from their child’s bedside.
“If my story can affect just one person in a positive way, it’s all worth it.” -Kendall LeeAnn Bayne
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The Kendall Bayne Foundation is dedicated to honoring the life of this remarkable young woman, and to encourage others to “Live a Kendall Life” — one that has kindness and compassion for others, exudes grace and courage, and projects a positive attitude in spite of adversity.
The Kendall Bayne Foundation actively supports several worthy causes, including education.
ASK was founded in 1975 by a group of parents in the pediatric oncology clinic at MCV (now the Children'sHospital of Richmond at VCU.) Today we're Central Virginia's largest and most comprehensive provider of support services for children with cancer and their families. Our support begins the moment of diagnosis and extendsthrough treatment and beyond.
Mattie Miracle Cancer Foundation is dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families, and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives.
Our Mission: End childhood cancer by driving targeted and innovative research with measurable results in an accelerated time frame.
CureSearch for Children’s Cancer is a 501(c)3 U.S.-based non-profit foundation that accelerates the search for cures for children’s cancer by driving innovation, overcoming research barriers and solving the field’s most challenging problems. We fight every day to make new, better treatments possible for the 43 children diagnosed with cancer each day.
Nancy founded Kids v Cancer when her son, Jacob, died of medulloblastoma.
In 2012, Congress passed Kids v Cancer’s Creating Hope Act pediatric priority
Kids v Cancer promotes pediatric cancer research by identifying structural impediments at key junctures in the research process – new drugs, tissue donation and access to funding – and developing strategies to address them.
In 2019 the #GoldTogether movement partnered with the American Cancer Society to have a broader reach and greater impact. Funds raised support childhood cancer research, support services, and overall awareness initiatives and childhood cancer prevention efforts.
#GoldTogether is a movement birthed from the vision and positive energy of pediatric brain cancer survivor and Relay For Life volunteer, Cole Eicher. Cole’s dream is simple: let’s work together to have a greater impact, more options, and better outcomes for kids fighting cancer.
The NCCS has provided nearly $66 million in direct financial assistance to more than 43,000 children with cancer. The organization works closely with over 300 hospitals and pediatric oncology treatment centers throughout U.S.
The average cost of treating childhood cancer is a staggering $833,000. It would be impossible for any parent to prepare for the emotional and financial toll childhood cancer takes on a family. But we’re here to help… NO MATTER WHAT. Because of you, we can provide the financial assistance needed to ensure a child with cancer gets the treatment they need – whether it is across town or across the country
It all started with one front yard lemonade stand.
When she was just four-years-old, Alex held her first childhood cancer fundraiser in her front yard and raised over $2,000. By the time of her death in 2004, Alex raised $1 million and inspired a legacy of hope and cures for childhood cancer.
Alex’s Lemonade Stand Foundation is changing the lives of children withcancer by funding impactful research, raising awareness, supporting families and empowering everyone to help cure childhood cancer.
Your donations fund research that brings better treatments and cures to children with cancer.
Mission: Provide innovative, arts-in-medicine supportive care programs for children coping with serious illness, their families, and the health care providers who care for them.
Why Beads?
Just like medals, ribbons and certificates, many ancient and modern-day cultures use beads to show bravery and accomplishment. They have long been used to protect warriors from natural and supernatural enemies, along with lending special magical protection for heroes during long journeys.
Mission: Make-A-Wish serves a unique, and vital, role in helping strengthen and empower children battling critical illnesses.
A wish experience can be a game-changer for a child with a critical illness. This one belief guides us in everything we do at Make-A-Wish. It inspires us to grant wishes that change the lives of the kids we serve. It compels us to be creative in exceeding the expectations of every wish kid. It drives us to make our donated resources go as far as possible.
Whatever the odds, whatever the obstacles ... wishes find a way to make the world better.
Give Kids The World Village is an 84-acre, nonprofit resort in Central Florida that provides weeklong, cost-free vacations to children with critical illnesses and their families.
Each year 27,000 children in the United States are diagnosed with a critical illness. Half of all children eligible for a wish through a partnering wish-granting organization choose to visit Central Florida and its collection of theme parks and other attractions.
Our goal, quite simply, is to provide everything these deserving families need to make their trip the vacation of a lifetime. Since 1986, more than 167,000 children and families have had their dreams fulfilled in a whimsical Village unlike any other place on earth.
The Kids Shouldn’t Have Cancer Foundation in Memory of Jonny Wade was founded shortly after Jonny’s death. Despite the circumstances, Jonny believed he could – and should – make a difference. We honor his selfless wish that no other kid should have cancer with our mission.
On Christmas Eve, Jonny passed away in our home as we held him in our arms. Despite his treatments. Despite our prayers. Despite it all.
Through this, we came to believe that while thousands of people prayed for a miracle to heal Jonny, Jonny himself was the miracle. He healed thousands by showing the strength of his faith in the midst of his weakness, and the Kids Shouldn’t Have Cancer Foundation exists solely to carry on this purpose.
The Honeysuckle Foundation for Children with Cancer has been helping kids with cancer & their families since 2003. Supporting psycho-social & child life programs that deal with quality of life issues families face is the cornerstone of our mission.
Based upon the personal experiences of our Inspirational Founder Alicia & her family, Honeysuckle knows the importance of psycho-social programs in successful outcomes.
We believe successful treatment is based upon complete care dealing with the body, mind & spirit. The doctors, nurses & hospitals provide the necessary medical care, we work to help with the rest.
The National Pediatric Cancer Foundation is a nonprofit organization dedicated to research and clinical trials to find less toxic, more effective treatments for childhood cancer.
Our purpose is to reduce the side effects of current treatments, improve survival rates, and ultimately eliminate childhood cancer.
Every week, 38 kids pass away from cancer.
We want to stop this, so we support the brightest and boldest minds whose groundbreaking research is leading to better treatments and cures.
We also fund vital family support services and advocate for childhood cancer education and awareness.
The Pediatric Cancer Research Foundation identifies and invests in leading edge research that demonstrates the best hope for a cure to childhood cancer. PCRF invites you to walk with us as we vigorously pursue eliminating childhood cancer through research.
Our values inspire us to make a difference: Knowledge, Caring, Hope, Forward Thinking.
We inspire hope in families affected by life-threatening childhood illness through our unique, supportive program at our beautiful campus on Maine’s Sebago Lake.
When a child faces serious illness, the entire family is impacted. Camp Sunshine’s mission is to provide respite and support to each family member - children, siblings, and parents. Since its inception, Camp Sunshine has offered comfort, hope, and support to over 50,000 individuals from all 50 states and 27 countries.
The Sunshine Kids Foundation was founded by Rhoda Tomasco in 1982 while she was serving as a volunteer in the pediatric cancer unit of a hospital in Houston, Texas. After seeing the loneliness and depression among children during their extended hospital treatments, Rhoda had a vision to provide these young cancer patients with opportunities to participate in positive group activities which promoted self-esteem, personal accomplishment and just plain old fashioned fun!
We look forward to the day when The Sunshine Kids Foundation will no longer need to exist. Until that time, the entire Sunshine Kids family is dedicated to providing the most exciting activities, trips and events for as many young cancer patients as possible.
Special Love is a nonprofit organization that provides cancer families a community of support, made up of other patients and families who know and understand the trials and triumphs of the cancer experience.
Special Love strives to bring together children with cancer and their families for fellowship, friendship, and fun. Families on the pediatric cancer journey have an ally during and after the cancer experience. Each family member is included in programs: Family weekends give mom and dad a chance to share with other adults, and siblings have a program that gives them the attention they need and an opportunity to make their own friends.
Hope for Henry collaborates with doctors, nurses, child life specialists and psychosocial team members on events and activities that advance medical care for children. Customized for infancy through adolescence, our programs alleviate the boredom and stress of long hospital stays, encouraging patients and their families to comply with treatments that can be uncomfortable or even painful. Our strategies complement and enhance medical treatment
Through live entertainment, music, and creativity, Joy To The Kids' mission is to ignite a spark, inspire hope, and create a safe and fun environment where children and their families can forget about illness, learn to visualize their dreams, and be transformed by the healing power of JOY.
We currently collaborate with several hospitals and oncology clinics including INOVA Children’s Hospital, INOVA Loudoun Hospital, Walter Reed Medical Center, and Pediatric Specialists of Virginia. Additionally, we regularly send our character out in support of other child-focused nonprofits including Children’s Hospice International, Make-a-Wish
During her three-year fight with leukemia and nine-month battle with a brain tumor, Amanda Hope dreamed that one day she would design a fun clothing line for kids just like her that would provide comfort and dignity during chemo treatments. Amanda's life ended all too soon but her dream lives on through our Comfycozy's for Chemo apparel and her legacy continues with our expansion of programs and services.
Children’s Cancer Cause is the leading national advocacy organization working to achieve access to less toxic and more effective pediatric cancer therapies; to expand resources for research and specialized care; and to address the unique needs and challenges of childhood cancer survivors and their families.
Children’s Cancer Cause leads efforts to ensure that these needs and perspectives of children with cancer are integrated into the highest deliberations on health care and cancer policy at the Federal level.
The 1Voice Foundation co-founded the Florida Coalition for Childhood Cancer, an organization that unites all agencies who support childhood cancer in the state of Florida and is part of the National Coalition for Childhood Cancer and The Alliance for Childhood Cancer, a national initiative for collaboration.
Our Mission: The CAUSE of the 1Voice Foundation is to support children with cancer and their families by connecting them with financial, emotional and educational CARE while funding research for tomorrow’s CURE.
We are a community of children, families, individuals, organizations, medical professionals and caregivers with interest in creating awareness, advocating, and providing support and resources for all those West Virginians affected by young adult, adolescence and childhood cancer.